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CERTaIN: Patient-Centered Outcomes Research

The University of Texas MD Anderson Cancer Center via edX

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Overview

In this course, you will learn about the characteristics of CER/PCOR, compare and contrast CER/PCOR studies and randomized controlled trials, and you will hear how PCOR researchers have overcome a variety of barriers to ensure patient-centered care.  

This course includes the following 11 lectures: 
  1. Engaging Patients and Stakeholders in Patient-Centered Outcomes Research
  2. Principles of Community-Based Participatory Research
  3. Shared Decision Making in Cancer: Models and Methods
  4. Patient Decision Support Tools in Cancer
  5. An Overview of Patient-Reported Outcomes in Cancer
  6. Designing Surveys: Asking Questions with a Purpose
  7. Qualitative Methods of Research
  8. Dissemination and Implementation Research in PCOR: Translating Knowledge Into Practice
  9. The Role of Health Literacy in Patient-Centered Outcomes Research
  10. Cognitive Impairment and Participation in Research
  11. Behavioral Interventions in Patient-Centered Outcomes Research
This course is intended for anyone interested in comparative effectiveness research (CER) and patient-centered outcomes research (PCOR) methods. 

This course is supported by grant number R25HS023214 from the Agency for Healthcare Research and Quality.

Syllabus

Engaging Patients and Stakeholders in Patient-Centered Outcomes Research (PCOR)
  • Patient and stakeholder engagement in research, principles and benefits
  • Tips for engagement
Principles of Community-Based Participatory Research (CBPR)
  • CBPR definition, principles, benefits and challenges
  • CBPR versus traditional academic research
Shared Decision Making (SDM) in Cancer
  • SDM models, definitions and myths
  • SDM intervention effectiveness
Patient Decision Support Tools in Cancer
  • Patient decision support technologies and clinical guidelines
  • Informed decision making, shared decision making and patient decision support technologies
  • International Patient Decision Aid Standards collaboration
An Overview of Patient-Reported Outcomes (PROs) in Cancer
  • How PROs differ from other outcomes
  • Choosing PROs
  • Study design and PRO components
Designing Surveys: Asking Questions with a Purpose
  • Survey purpose and types
  • Survey samples, question design and format
  • Reliability, validity and sources of error
Qualitative Methods of Research
  • Qualitative and quantitative data comparison 
  • Mixed methods
  • Thematic content analysis
Dissemination and Implementation Research in PCOR: Translating Knowledge Into Practice
  • Common dissemination and implementation research questions and outcomes
  • Path of research to practice
  • Diffusion of innovation and the consolidated framework for implementation research
The Role of Health Literacy in PCOR
  • Health literacy and its importance and impact on health status outcomes
  • Methods of assessing health literacy in PCOR
Cognitive Impairment and Participation in Research
  • Capacity to consent to participation in research
  • Ethical involvement of cognitively impaired subjects
  • Involvement of surrogate decision-makers for impaired subjects
Behavioral Interventions in PCOR
  • Research partnerships in behavioral interventions
  • Fidelity and adoption

Taught by

Maria E. Suarez-Almazor, MD, PhD and Robert J. Volk, PhD

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